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Dr. Lucia Kim and Associates
Optometrists
8763 Bayview Ave.
Richmond Hill, ON L4B 3V1

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Home » Your Eye Health » Eye Conditions » Retinitis Pigmentosa

Retinitis Pigmentosa

Retinitis pigmentosa (RP) is an eye disease that is inherited, and very rare. About one in four thousand Americans are affected by this disease. The retina, which is the light-sensitive portion of the eye, degenerates progressively over time. The result of this degeneration is the loss of peripheral vision, loss of central vision, night blindness, and sometimes blindness.

Retinitis Pigmentosa Symptoms

Childhood is when the first symptoms of retinitis pigmentosa generally appear. Usually both eyes are implicated in the disease. Sometimes RP doesn’t appear until older age, at age 30 or even older.

The main symptom of RP in the beginning stages is night blindness. Tunnel vision may develop in the later stages of the disease, where central vision is affected, and only a small portion of sight is available.

One study of patients suffering from RP revealed that, in patients 45 years and older, 52% had at least 20/40 central vision in one eye, 25% had 20/200 vision or below, and 0.5% were completely blind.

Causes of Retinitis Pigmentosa

Very little is known about the causes behind RP, beyond that it is an inherited disease. Scientists believe that defective molecules in our genes cause RP. This explains why the disease affects patients so differently.

If one parent carries the defective gene, it’s possible to get RP, even if your parents do not have the disease. Approximately one percent of the population are carriers of the RP recessive gene. Sometimes this recessive gene is passed on to the child, who will then develop retinitis pigmentosa.

RP affects the retina in the eye. The disease causes the light-sensitive cells that are located in the retina to die gradually. Most often, the cells that are used for night and peripheral vision, called rod cells, are affected. Sometimes the cells that are used to see color and for central vision, called cones, are also affected.

Diagnosis and Treatment

The main diagnostic tool employed is visual field testing. This test determines how much peripheral vision loss has occurred. Other diagnostic tools may be used to test night vision and color vision.

Few treatments exist for RP. What is available helps conditions associated with RP, not the disease itself. For patients older than 25, there is a prosthesis system that was recently approved. This system captures images via glasses, and transmits the signal captures to an implanted device located on the retina.

Most treatments center around helping the patient learn to deal with their vision loss. Psychological counseling, and occupational therapy, may be recommended. Technological instruments that help with low vision, such as illuminated magnifiers, can help patients with RP see as well as possible with their limited vision. Some doctors recommend vitamin A supplements as there is some evidence that vitamin A might help delay the progression of the disease.

For the future, scientists are hopeful that there will be additional treatments for RP, including new drug treatments and retinal implants.

Dear Patients:

I am writing a letter to you about an eye care crisis in the province of Ontario after 30 years of neglect by the government of Ontario.

Since 1989, optometrists are getting the same reimbursements for the OHIP-covered eye exam-$45.

Remember-in 1989, the minimum wage was $5 an hour and now 32 years later, the minimum wage is $15 an hour. A chocolate bar in 1989 was 40 cents and now it is about $1.25. Most goods and services have increased by at least 3-fold.

The Ontario government has not adjusted our fees to inflation for 30 years but our expenses (rent, utilities, wages, etc.) have gone up 3-fold.

Can you understand our frustration?

This is not sustainable. Ultimately, patient care will suffer. With the expected ongoing restrictions due to COVID 19, many practices will be forced to shut down because we cannot cover the costs of running our practices.

Therefore, optometrists have voted to withdraw all OHIP services on September 1, 2021 to protest 30 years of Ontario government neglect and disrespect.

This job action will force the government to start negotiating fairly with us. If you support our action, please:

  1. Go to www.saveeyecare.ca and sign the online petition.
  2. Contact the Minister of Health, the Hon. Christine Elliott 416-327-4100.

Thank you and I hope I can count on your support.

Sincerely, Lucia Kim Optometrist

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We are now able to bill your insurance provider directly.